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Archive: Social Media in Clinical Research

August 22, 2014
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Course Description

The use of social media in all aspects of the research enterprise has grown exponentially. Researchers from across disciplines and institutional types are finding innovative ways to facilitate research, from online recruitment mechanisms to informed consent portals. Concurrently, researchers and their ethics review boards have been grappling with ethical and regulatory challenges as technologies continue to change rapidly, resulting in a flurry of new questions: Can I use social media to find “lost to follow up” subjects? Can I join a support group to find subjects? What regulations exist around the use of social media? Just what is public information? This web seminar will provide an overview of Institutional Review Board (IRB) considerations of social media in research, including those major ethical challenges and data security issues that may arise with the use of social media for recruitment, consent processes, data collection, and data dissemination.

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Learning Objectives

  • Describe IRB perspectives on using social media in research
  • Review common forms of recruitment using social media
  • Examine models of informed consent in social media research
  • Explore examples of language related to privacy and confidentiality in consent documents

Who Should Attend

  • Clinical Research Associates
  • Principal Investigators
  • Institutional Review Board Members

Instructor

The course will be led by one of the following instructors:

Elizabeth A. Buchanan, Ph.D.

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Hold this course at your company! For more information, contact Naila Ganatra at +1 215.413.2471.